Christopher, Suzanne, PhD
Alma Knows His Gun McCormick, AA
John Hallett,, BS
Sloane Real Bird, BS
Vanessa Simonds, ScD
Christine Martin, BS
Jillian Inouye, PhD, FAAN
Montana State University, University of Nevada Las Vegas
Since 1996, members of the Crow Nation and faculty and students at Montana State University have worked on a successful community-based participatory translational research partnership, which has led to improvements in health behaviors, increased trust and sustainability. Through a community-based process, we expanded our focus to develop and test a translational intervention research project to improve chronic disease management with and for members of the Crow Nation.
The Crow Reservation, located in southeastern Montana, is home to a rich cultural history and strong connections to family and place. However, major barriers to health and healthy behaviors have caused high levels of chronic disease such as diabetes. Proper management of chronic diseases leads to lower mortality rates and a higher quality of life.
Existing models of chronic illness management include aspects that are not completely consonant with the Crow culture, neglecting community-identified factors that affect disease management including historical trauma and discrimination. To understand facilitators and barriers to chronic disease management, we conducted exploratory qualitative interviews with Crow Indian men and women with a chronic disease diagnosis. We asked participants to tell their story about what it is like to manage their disease. RESULTS: We will share how we used these story data to develop a model of chronic disease management and an intervention â€“ Baaniilaa – to improve management specific to the Crow Nation.
Our process and product can be helpful for other projects/communities interested in using story data to develop an understanding of health and improve health outcomes.